Thank you to everyone who was able to attend our PWS conference, “Building a Community of Supports”!

Below, please find reference materials relating to the conference. If you have any questions, concerns or comments, please email them to Penny Chavez.

 

ARCA PWS Project Brochure

 

Prader-Willi Syndrome Association • USA

Helping All Families and Professionals

Medical Overview

Q and A

Someone You Know

Supporting Students

 

Behavioral Handouts

The PWS Personality

Behavior Plans

Behavior Skills 101

Gourash Anatomy of a Tantrum

The Hyper-Reactive Child and Shifting Attention

Making Changes

Skin Picking

 

Food and Behavior

Food Security

Weight Regulation in PWS

 

Medical Crises

Inpatient Crises Intervention

Emergencies • Behavioral Considerations

Leg Oedema (fluid retention)

 

New Concepts in Nutrition

PWS Food Pyramid

Supplements

 

Psychiatric Handouts

SSRI Medication in Children, Adolescents and Young Adults with PWS

Managing Prader-Willi Syndrome: A Primer for Psychiatrists

Psychiatric Alert

 

PWS Essentials

Subclinical Dysphagia in Persons With Prader–Willi Syndrome

PWS Medical Alerts

Story-Telling in PWS

 

PWS Gastrointestinal

Gastroparesis – The Newest Threat

Subclinical Dysphagia in Persons With Prader–Willi Syndrome

PWS GI Algorithm Chart

Recognizing Gastric Dilation and Associated Risks in PWS

Gastric Rupture and Necrosis in Prader-Willi Syndrome

Acute Idiopathic Gastric Dilatation With Gastric Necrosis in Individuals With Prader-Willi Syndrome